Do you want to receive bad news through your patient accessible electronic health record? A national survey on receiving bad news in an era of digital health

Hanife Rexhepi; Jonas Moll; Isto Huvila; Rose-Mharie Åhlfeldt

Do you want to receive bad news through your patient accessible electronic health record? A national survey on receiving bad news in an era of digital health

Hanife Rexhepi, Jonas Moll, Isto Huvila, Rose-Mharie Åhlfeldt

Research output: Chapter in Book/Conference proceeding › Conference contribution › Scientific › peer-review

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Abstract

Despite the fact that patient accessible electronic health records (PAEHRs) have been around for many years in several countries, there is a lack of research investigating patient x0301 preferences for receiving bad news, including through PAEHRs. Little is also known about the characteristics of the patients who prefer to receive bad news through the PAEHR in terms of e.g. medical diagnosis, age and educational level. This study, based on a national patient survey in Sweden (N=2587), investigated this. Results show that, generally, receiving bad news by reading in the PAEHR is still among the least preferred options. Additionally, a higher proportion of men want to receive bad news in the PAEHR compared to women (p=0.001), and the same goes for those who are not working/have worked in healthcare (p=0.007). An effect of disease groups was also found, showing that diabetes patients in particular, want to receive bad news through the PAEHR.

Original language	English
Title of host publication	Proceedings of the Eighteenth International Symposium for Health Information Management Research Kalmar, Sweden (Online) 17 - 18 October 2020
Editors	Peter Bath, Päivi Jokela, Laura Sbaffi
Place of Publication	Kalmar and Sheffield
Publisher	Linnaeus University, University of Sheffield
Pages	169-178
Number of pages	10
ISBN (Print)	978-91-89081-09-3
Publication status	Published - 2020
MoE publication type	A4 Article in a conference publication
Event	International Symposium on Health Information Management Research ISHIMR - International Symposium for Health Information Management Research Duration: 24 Jun 2015 → 26 Jun 2015

Conference

Conference	International Symposium on Health Information Management Research ISHIMR
Period	24/06/15 → 26/06/15

Keywords

abnormal test results
bad news
patient accessible electronic health record
patient
physician

Access to Document

Rexhepi2020bFinal published version, 155 KBLicence: CC BY-NC-ND

https://urn.fi/URN:NBN:fi-fe202201148126

Cite this

Rexhepi, H., Moll, J., Huvila, I., & Åhlfeldt, R.-M. (2020). Do you want to receive bad news through your patient accessible electronic health record? A national survey on receiving bad news in an era of digital health. In P. Bath, P. Jokela, & L. Sbaffi (Eds.), Proceedings of the Eighteenth International Symposium for Health Information Management Research Kalmar, Sweden (Online) 17 - 18 October 2020 (pp. 169-178). Linnaeus University, University of Sheffield. https://urn.fi/URN:NBN:fi-fe202201148126

Rexhepi, Hanife ; Moll, Jonas ; Huvila, Isto et al. / Do you want to receive bad news through your patient accessible electronic health record? A national survey on receiving bad news in an era of digital health. Proceedings of the Eighteenth International Symposium for Health Information Management Research Kalmar, Sweden (Online) 17 - 18 October 2020. editor / Peter Bath ; Päivi Jokela ; Laura Sbaffi. Kalmar and Sheffield : Linnaeus University, University of Sheffield, 2020. pp. 169-178

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title = "Do you want to receive bad news through your patient accessible electronic health record? A national survey on receiving bad news in an era of digital health",

abstract = "Despite the fact that patient accessible electronic health records (PAEHRs) have been around for many years in several countries, there is a lack of research investigating patient x0301 preferences for receiving bad news, including through PAEHRs. Little is also known about the characteristics of the patients who prefer to receive bad news through the PAEHR in terms of e.g. medical diagnosis, age and educational level. This study, based on a national patient survey in Sweden (N=2587), investigated this. Results show that, generally, receiving bad news by reading in the PAEHR is still among the least preferred options. Additionally, a higher proportion of men want to receive bad news in the PAEHR compared to women (p=0.001), and the same goes for those who are not working/have worked in healthcare (p=0.007). An effect of disease groups was also found, showing that diabetes patients in particular, want to receive bad news through the PAEHR.",

keywords = "abnormal test results, bad news, patient accessible electronic health record, patient, physician",

author = "Hanife Rexhepi and Jonas Moll and Isto Huvila and Rose-Mharie {\AA}hlfeldt",

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booktitle = "Proceedings of the Eighteenth International Symposium for Health Information Management Research Kalmar, Sweden (Online) 17 - 18 October 2020",

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Rexhepi, H, Moll, J, Huvila, I & Åhlfeldt, R-M 2020, Do you want to receive bad news through your patient accessible electronic health record? A national survey on receiving bad news in an era of digital health. in P Bath, P Jokela & L Sbaffi (eds), Proceedings of the Eighteenth International Symposium for Health Information Management Research Kalmar, Sweden (Online) 17 - 18 October 2020. Linnaeus University, University of Sheffield, Kalmar and Sheffield, pp. 169-178, International Symposium on Health Information Management Research ISHIMR, 24/06/15. <https://urn.fi/URN:NBN:fi-fe202201148126>

Do you want to receive bad news through your patient accessible electronic health record? A national survey on receiving bad news in an era of digital health. / Rexhepi, Hanife; Moll, Jonas; Huvila, Isto et al.
Proceedings of the Eighteenth International Symposium for Health Information Management Research Kalmar, Sweden (Online) 17 - 18 October 2020. ed. / Peter Bath; Päivi Jokela; Laura Sbaffi. Kalmar and Sheffield: Linnaeus University, University of Sheffield, 2020. p. 169-178.

Research output: Chapter in Book/Conference proceeding › Conference contribution › Scientific › peer-review

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AU - Rexhepi, Hanife

AU - Moll, Jonas

AU - Huvila, Isto

AU - Åhlfeldt, Rose-Mharie

PY - 2020

Y1 - 2020

N2 - Despite the fact that patient accessible electronic health records (PAEHRs) have been around for many years in several countries, there is a lack of research investigating patient x0301 preferences for receiving bad news, including through PAEHRs. Little is also known about the characteristics of the patients who prefer to receive bad news through the PAEHR in terms of e.g. medical diagnosis, age and educational level. This study, based on a national patient survey in Sweden (N=2587), investigated this. Results show that, generally, receiving bad news by reading in the PAEHR is still among the least preferred options. Additionally, a higher proportion of men want to receive bad news in the PAEHR compared to women (p=0.001), and the same goes for those who are not working/have worked in healthcare (p=0.007). An effect of disease groups was also found, showing that diabetes patients in particular, want to receive bad news through the PAEHR.

AB - Despite the fact that patient accessible electronic health records (PAEHRs) have been around for many years in several countries, there is a lack of research investigating patient x0301 preferences for receiving bad news, including through PAEHRs. Little is also known about the characteristics of the patients who prefer to receive bad news through the PAEHR in terms of e.g. medical diagnosis, age and educational level. This study, based on a national patient survey in Sweden (N=2587), investigated this. Results show that, generally, receiving bad news by reading in the PAEHR is still among the least preferred options. Additionally, a higher proportion of men want to receive bad news in the PAEHR compared to women (p=0.001), and the same goes for those who are not working/have worked in healthcare (p=0.007). An effect of disease groups was also found, showing that diabetes patients in particular, want to receive bad news through the PAEHR.

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BT - Proceedings of the Eighteenth International Symposium for Health Information Management Research Kalmar, Sweden (Online) 17 - 18 October 2020

A2 - Bath, Peter

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PB - Linnaeus University, University of Sheffield

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ER -

Rexhepi H, Moll J, Huvila I, Åhlfeldt RM. Do you want to receive bad news through your patient accessible electronic health record? A national survey on receiving bad news in an era of digital health. In Bath P, Jokela P, Sbaffi L, editors, Proceedings of the Eighteenth International Symposium for Health Information Management Research Kalmar, Sweden (Online) 17 - 18 October 2020. Kalmar and Sheffield: Linnaeus University, University of Sheffield. 2020. p. 169-178