Heart failure matters - Producing web-based patient education material for Health Village
Soininen, Katja (2019)
Soininen, Katja
2019
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Julkaisun pysyvä osoite on
https://urn.fi/URN:NBN:fi:amk-2019122127812
https://urn.fi/URN:NBN:fi:amk-2019122127812
Tiivistelmä
Digital services can be used as an additional method together with traditional treatment to support the daily life and self-care of the patients with chronic diseases. Chronic heart failure is a serious chronic disease with poor prognosis and high mortality. Motivating and comprehensive methods to educate patients daily life and self-care are important in increasing the heart failure patients´well-being and ability to live with the disease. Developing web-based patient education is one way to increase healthcare accessibility when it may be limited due to long distances, health care availability or due to individual factors.
This thesis was performed as a development work and aimed at producing web-based material for Heart Failure in Health Village portal. Health Village portal is built together by all five Finnish Hospital Districts as a part of Virtual Hospital 2.0 project to support the health of citizens, provide information and tools both for the patients and the professionals. The objective was to produce educational, motivating and practical web service for patients aiming to improve their quality of life by increasing their empowerment in daily life and thus increasing engagement in self-care. The other purpose was to create a modern and practical guide for the professionals to support patient education.
This development work was based on theoretical framework, clinical expertise and was done together with patients involved in the planning, performing and evaluating phases. Heart failure website provides information on the causes and symptoms of heart failure, the treatment options and self-care. It also includes videos, peer stories, quiz and exercises to demonstrate the ways how to deal with the disease. Web service is available in https://www.terveyskyla.fi/sydansairaudet/tietoa-sydänsairauksista/sydämen-vajaatoiminta.
Producing sustainable and valid web service requires a thorough plan to maintain and update the service and good practices and technologies to promote accessibility. Development also requires active involvement of end-users. In the future, it will be important to increase the awareness of the heart failure patients and their relatives together with the health care professionals to use the Heart failure website.
This thesis was performed as a development work and aimed at producing web-based material for Heart Failure in Health Village portal. Health Village portal is built together by all five Finnish Hospital Districts as a part of Virtual Hospital 2.0 project to support the health of citizens, provide information and tools both for the patients and the professionals. The objective was to produce educational, motivating and practical web service for patients aiming to improve their quality of life by increasing their empowerment in daily life and thus increasing engagement in self-care. The other purpose was to create a modern and practical guide for the professionals to support patient education.
This development work was based on theoretical framework, clinical expertise and was done together with patients involved in the planning, performing and evaluating phases. Heart failure website provides information on the causes and symptoms of heart failure, the treatment options and self-care. It also includes videos, peer stories, quiz and exercises to demonstrate the ways how to deal with the disease. Web service is available in https://www.terveyskyla.fi/sydansairaudet/tietoa-sydänsairauksista/sydämen-vajaatoiminta.
Producing sustainable and valid web service requires a thorough plan to maintain and update the service and good practices and technologies to promote accessibility. Development also requires active involvement of end-users. In the future, it will be important to increase the awareness of the heart failure patients and their relatives together with the health care professionals to use the Heart failure website.