Patient experiences in care of Chronic Recurrent Multifocal Osteomyelitis
Hämäläinen, Julia (2018)
Hämäläinen, Julia
Jyväskylän ammattikorkeakoulu
2018
All rights reserved
Julkaisun pysyvä osoite on
https://urn.fi/URN:NBN:fi:amk-2018121621838
https://urn.fi/URN:NBN:fi:amk-2018121621838
Tiivistelmä
Chronic recurrent multifocal osteomyelitis (CRMO) is a rare bone disease causing severe pain. The disease has a negative effect on patients’ physical and mental health resulting in reduced quality of life. The needs of care within patients suffering from rare diseases are not well fulfilled, thus, the care of rare disease patients could be developed. The qualitative research presents patients’ experiences in care of chronic recurrent multifocal osteomyelitis.
The aim of the qualitative research was to find out the experiences of patients in the care of CRMO. The purpose of the research was to increase understanding of the disease among nurses, and thus, develop the care given to patients with rare diseases.
The research was implemented using a qualitative approach. A narrative approach was applied to collect the data. The data was collected using a virtual interview method. The sample consisted of one American woman and two Finnish women suffering from CRMO. Inductive content analysis method was used to analyze the data.
The study results showed that the patients were mainly dissatisfied with the care they had been given since the care did not meet the patients’ needs. However, the care experiences had often been positive when care was provided by healthcare professionals familiar with the condition.
As a conclusion, patients suffering from CRMO had experienced that the care they had received had been insufficient. However, the quality of care had been better when healthcare providers were familiar with the disease and its treatment. Thus, increasing understanding might increase the quality of care.
The aim of the qualitative research was to find out the experiences of patients in the care of CRMO. The purpose of the research was to increase understanding of the disease among nurses, and thus, develop the care given to patients with rare diseases.
The research was implemented using a qualitative approach. A narrative approach was applied to collect the data. The data was collected using a virtual interview method. The sample consisted of one American woman and two Finnish women suffering from CRMO. Inductive content analysis method was used to analyze the data.
The study results showed that the patients were mainly dissatisfied with the care they had been given since the care did not meet the patients’ needs. However, the care experiences had often been positive when care was provided by healthcare professionals familiar with the condition.
As a conclusion, patients suffering from CRMO had experienced that the care they had received had been insufficient. However, the quality of care had been better when healthcare providers were familiar with the disease and its treatment. Thus, increasing understanding might increase the quality of care.