Selfies of Sickness

Thumbnail Image
Journal Title
Journal ISSN
Volume Title
Conference article in proceedings
This publication is imported from Aalto University research portal.
View publication in the Research portal
View/Open full text file from the Research portal
Author
Date
2017
Department
Professorship Nieminen M.
Department of Computer Science
Major/Subject
Mcode
Degree programme
Language
en
Pages
6
172-177
Series
Building Capacity for Health Informatics in the Future, Studies in Health Technology and Informatics, Volume 234
Abstract
This paper describes the use of video diaries as a tool for understanding children’s patient experience and as a potential method for directly gathering patient experience information from children. It was hypothesized that this method would uncover otherwise hidden knowledge about children ages 10–16 years with chronic illnesses. The aim of this paper is to assess the potential applicability of this method as a standalone tool for the public healthcare sector to capture and better understand the patient experiences as a basis for continuous service development. Therefore, this paper does not describe the results on children’s patient experiences. The video diaries proved to offer rich data, but certain shortcomings were also identified. Motivating teens, especially boys, was found to be difficult. Needed changes are addressed, and suggestions for future work are presented.
Description
Keywords
probes, video diaries, patient experience, feedback, children, teenagers, chronic illness
Other note
DOI
10.3233/978-1-61499-742-9-172
Citation
Karisalmi , N & Nieminen , M 2017 , Selfies of Sickness : The Use of Video Diaries with Chronically Ill Children . in F Lau , J Bartle-Clar , G Bliss , E Borycki , K Courtney & A Kuo (eds) , Building Capacity for Health Informatics in the Future . Studies in Health Technology and Informatics , vol. 234 , IOS Press , Amsterdam , pp. 172-177 , Information Technology and Communications in Health , Victoria , British Columbia , Canada , 16/02/2017 . https://doi.org/10.3233/978-1-61499-742-9-172
Permanent link to this item
https://urn.fi/URN:NBN:fi:aalto-201710157051
Collections
[article-cris] Perustieteiden korkeakoulu / SCI